I am taking a bold new step and conducting a survey on people with chronic illnesses that are not easily treated or explained by medicine-as-usual. But I need your help!
I’m conducting a survey regarding people with medically unexplained illnesses and how they cope with their illness and make use of their resources, including medical professionals. It will hopefully be published in a peer-reviewed article. Medically unexplained illnesses that the survey included are Fibromyalgia, Myalgic Encephalomyelitis or Chronic Fatigue Syndrome, and Multiple Chemical Sensitivities. I’m seeking participant for this study who are affected by this illness personally, are 18 years or older, and are English-speaking. This qualitative questionnaire is meant to help service providers understand the needs and strengths of people with these conditions, how they cope with stress, and how they make use of the resources available to them. It is my hope that increased understanding and knowledge about these conditions will help improve service delivery and empower people with medically unexplained illnesses to make better use of the resources available to them. Once collected, I will analyze the data using grounded theory methods. I’m hoping that if you or someone you know has ME/CFS, Fibromyalgia, or Multiple Chemical Sensitivities, you can fill out the questionnaire, which is available at this link:
The questionnaire is anonymous and I will do everything in my power to protect the privacy and anonymity of participants. If you have any questions or suggestions regarding the survey, please don’t hesitate to contact me at firstname.lastname@example.org. I appreciate your assistance in this matter. If you’re interested in the results, please contact me at that same email address. Thank you in advance.